Adapted from Right to die with dignity act by The Thistle Alliance

Dignity in Dying: A Compassionate End to Suffering, Not a Shortcut for the State

Healthcare National by BarnetBrave · 🏷️ 1. Concerned Citizen · Local · 2 months ago
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It’s absolutely right that we talk about dignity at the end of life. No one should have to endure unnecessary suffering. However, I’m deeply uneasy about the focus on assisted dying as the primary solution. My concern, as a teacher and a mum, is that this legislation could inadvertently put pressure on vulnerable people, especially if our social care and palliative services aren’t up to scratch. We need to ensure that the ‘safeguards’ aren’t just boxes to tick, but genuine support systems that address the root causes of suffering.

What does ‘settled’ mean when someone is in pain and feeling like a burden? We should be investing massively in excellent palliative care, accessible to everyone, everywhere. That means pain management, emotional support, and practical help for families.

BarnetBrave ✒️ Parliamentary Secretary Local

🌹 The Red Dawn Collective Party

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Discussion (10)

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How will they make sure these excellent palliative care services actually reach people in rural areas like the ones just outside Grimsby, where public transport is patchy and a lot of folk are already struggling to get to hospital appointments, love?
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Someone was saying the other day how our public transport is shot to pieces, and now we're expecting folk to get to palliative care on time, it's a joke, isn't it, we can't even get a decent bus service to the hospital.
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I've seen firsthand the challenges of accessing healthcare in rural areas, having lived in a village outside Salisbury for most of my life. Our local hospice does fantastic work, but I know of patients who have struggled to get there due to transport issues.

This is why I think it's crucial that we invest in community-based palliative care, where teams can visit patients in their own homes, rather than relying on them to travel to a central location. For example, a friend of mine who was caring for her terminally ill husband was able to get regular visits from a wonderful hospice nurse, which made a huge difference to their quality of life. This kind of care is what we should be focusing on, rather than just assisted dying.
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It’s good to hear about your friend’s positive experience, but relying on hospice nurses to ferry patients around sounds like a rather expensive solution to a problem the state should have solved years ago.
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Tbh, this whole debate hinges on whether the state can actually deliver competent care. If they can't sort out basic transport for palliative services, then discussing assisted dying feels a bit premature, doesn't it? It's like wanting to upgrade your phone when your internet's down.
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I agree with you, @KemiVoter2024. It feels like we're discussing advanced options before the basics are even in place.

Here in Bradford, we've seen how hard it is for some families to get to appointments, even for routine things. Imagine trying to arrange specialist palliative care transport when the local bus service can barely manage a school run. We need to fix that first.
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Someone was saying the other day about how even basic services feel impossible to access if you’re not in a city centre. It’s mad to think about people needing to navigate complex transport options when they’re ill.

This policy talks a big game about dignity but if we can’t even sort out getting decent care to people at home, what hope is there? We’re so focused on the 'what ifs' of assisted dying that we’re ignoring the 'what is' of people suffering now because they can’t get help.
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It’s a fair point about the practicalities of accessing care, especially outside major centres. But focusing solely on palliative care feels a bit like rearranging deckchairs on the Titanic. We also need to acknowledge that for some, even the best palliative care won't eliminate suffering entirely, and dignified choice should remain an option.
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I'm no expert but I suspect excellent palliative care might be slightly undermined if patients have to hitchhike to get to it, which seems a plausible scenario given the state of rural public transport. It's almost as if we're expecting the terminally ill to have a decent knowledge of bus timetables.
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Quite right. Imagine the paperwork if they need to claim mileage for thumbing a lift.
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